Coping advice from the pros

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By: Tiffiny | May 23rd, 2013 @ 7:28 pm | Feature stories |


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Perhaps the most asked question to people with spinal cord injuries is, “How do you manage so well?” They want to know our secret (as if we have one). Maybe we do and have no idea. I do know this though – going through a spinal cord injury can strengthen you like nothing else.

From quadriplegics on ventilators to walking paraplegics, we all cope in our own way, and I love how many of us have gone a step further- making videos sharing what we’ve learned with the world. Here are three videos straight from real folks with spinal cord injuries, opening up their hearts and souls.

Billy from Seattle

In our first video, meet Billy Price, a great speaker and C6 quadriplegic from Seattle, Washington. In this video, professionally made by the University of Washington Medical Center, he opens up about his injury, which happened when he was in college (he was sleepwalking and fell out of a three story window, breaking his neck and back).

He talks about how in the beginning… he thought life wasn’t worth living if he couldn’t walk, and then he saw the pain in his mother’s eyes when he said that. As years past, he found out how wrong he was – you can still find success and have fun.

Billy went back to college and graduated in five years with an engineering degree. He knows he could have crawled into a hole, but he refused to. He still wants to walk everyday if he could, “but it’s not an excuse to stop living,” he says (love this line). The video also shows his cool downtown Seattle condo and his awesome adapted VW van. Watch the video

Margarita from Denver

The second video comes from a beautiful woman by the name of Margarita Verano.  In 2010, she broke her back at the T12 level while riding a motorcycle tandem in Medellin, Colombia. To cope, she views her spinal cord injury as a rebirth, and she says her injury hasn’t slowed her down one bit. Instead “these wheels were meant to ride,” she says. And she has done some awesome things since her injury.

One of the most impressive is become a certified yoga teacher.  She’s also gotten back into kayaking, a sport she loved before her injury (she grew up in Miami on the beach, buy now lives in Denver, Colorado). In her great homemade video, she shows photos from her life pre and post-injury, and reflects on what she believes her injury means – a second chance to live consciously and with purpose. Watch her video

Brian from South Carolina

And our last video comes from Brian, a paraplegic and avid motorcyclist from South Carolina.  I love this homemade video because it doesn’t beat around the bush.  He tells it just like it is – SCI is not fun, but he gives very practical and helpful advice on how to cope (he helps a lot of injured men online).

Staying busy was the number one thing he says that helped him the first year of his injury. He recommends everybody find something to keep them busy right away after an injury. He worked tirelessly to find a new way to ride his motorcycle after his injury, and find a way did he ever.

He also gives more great advice. One of the biggest – you gotta fight the fight. And another, you can still find things that make you happy. He also talks about the importance of finding normalcy, which can help immensely in the beginning. When he got back to work, his ability to deal with his injury (mentally) became that much stronger. “You have to fight to be happy.” Watch his video

They say dealing with a spinal cord injury is 90% mental and 10% physical, and they may be right.  I do know that the best advice usually comes from people who have experienced it personally, and that makes these videos priceless.

How do you coped with your spinal cord injury?  What tips would you give a newbie?

Watch the videos!

- A new C6 quad from the University of Washington talks about moving forward

- Margarito Verano’s poignant video on her rebirth post-SCI

- Brian, a paraplegic, opens up on how he copes

SCI Superstar: Tamara Mena

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By: Tiffiny | May 21st, 2013 @ 5:26 pm | SCI Superstars, Uncategorized |


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Stunning right? Tamara Mena, a paraplegic from California, is one of the most positive women you’ll ever meet. She’s an ambassador for Esko Bionics, the cutting-edge biotech company that creates exoskeletons for people with paralysis, as well as a model and motivational speaker.

Why she’s fearless

Born and raised in Leon, Mexico, Tamara moved to California with her mom when she was 13. It was in the US is where this over-achiever in school set her sights on college. But in 2005, when she was on a weekend getaway in Mexico with her boyfriend, the taxi they were in hit a horse on the road, with the horse landing on the car killing her boyfriend, and paralyzing Tamara instantly.

After returning home for months of rehab, she decided to not let the tragedy she went through diminish her spirit…or her ambition. She was determined to return to college and graduate with her Bachelor’s degree, which she finally achieved when she received a communication studies degree from California State University Stanislaus. .

After graduation, Tamara launched her motivational speaking career and right away she got one of the coolest gigs imaginable – she was selected as a test pilot for Esko Bionics, the world-renowned company creating exoskeletons for people with spinal cord injuries.

In 2011, because of this opportunity, she was able to walk again Mexico. So cool! She demonstrated Esko at “La Ciudad de Las Ideas,” a festival that brings together the world’s greatest thinkers. She’s also demoed the exoskeleton on Sabado Gigante and on The Doctors TV show. Watch her walk at the festival

And last November, Tamara crossed the Atlantic to Rome, Italy, to use both her modeling and speaking skills in one awesome event – the huge annual disabled fashion show, Modelle & Rotelle. This show features dozens of stunning women wheelchair-users. Watch Tamara report from Modelle & Rotelle

What’s next?

Tamara as of late has definitely tapped into her feminine side, and she does it like no one else. This past March she was a contestant in Nuestra Belleza Latina, a beauty pageant/reality show (hosted by Univision; an able-bodied event). She looked so good and so poised amongst all those two-leggers. Tamara surely knows how to work it (not to mention having absolutely no fear). Love, love, love her. Watch her audition tape

And Tamara has added another awesome ability to her portfolio – wheelchair latin ballroom. Last August, she danced at the American DanceWheels Foundation annual dance event hosted by the Cheryl Burke Dance Studio. Watch her dance in a beautiful red dress

Not to be out done, Tamara is giving back. She hosts a support group, the “Young Women’s SCI Support Group,” at Santa Clara Valley Medical Center, where she shares her wisdom with women who are in the midst of figuring out life with a spinal cord injury. Learn more

Beautiful both inside and out, a shining beacon of positivity, Tamara’s spinal cord injury experience…one of sharing love and positivity with others is certainly, without question, one for the records.

Visit her site: Tamara Mena

Have you met Tamara? Have you attended one of her support groups?

Watch her videos!

- Tamara modeling for Ti Light Wheelchairs

- Tamara reporting for the adapted Italian fashion event, Modelle & Rotelle

- Tamara’s audition for La Nuestra Belleza Latina 2013 pageant

- Tamara walks again in Mexico at La Cuidad de Las Ideas festival