What SPINALpedia is

SPINALpedia is a video sharing mentor network for people with paralysis from spinal cord injury or illness and their family and friends.

The experts of life with paralysis are the people who live it every day, injured or not. With an incredible diversity of experiences and challenges for a variety of people and injuries, the process of adaptation is daunting and complicated. With SPINALpedia, we give people the opportunity to share their experiences and learn from others, meeting a diversity of needs and creating a dynamic, sustainable community grounded in our common desire to overcome the challenges of paralysis.

 

Our mission and vision

SPINALpedia is here to bridge the gap between an able-bodied life and a healthy, productive life with paralysis for both the people injured as well as their families and friends. We envision a society where people with paralysis are no longer isolated and can return to being active members of society. In order to realize that goal, we need to unite our community and find strength in the power of our experiences.

 

What does SPINALpedia do

SPINALpedia crafts an experience for our users that is based on our members personal experiences with paralysis. For most people, particularly families struggling with a new injury, time is of the essence in terms of finding useful resources. Join us to:

 

  • Watch videos in a variety of categories related to life with paralysis
  • Find videos that are most relevant to your situation and needs
  • Connect with users who have overcome similar challenges
  • Share your experiences and stories with the community by uploading videos
  • Rate and comment on videos helping to identify the best videos and stimulating conversation

About the creators

When Josh Basile and Brittany Martin met in the summer of 2007, they shared the same mission to improve the quality of life for people with paralysis. Both personally affected by spinal cord injuries, Josh and Britt recognized the difficulty many people experience when trying to find useful information to adapt one's life, and came together to create SPINALpedia and bring the most useful resources to the paralysis community. Both believe that more people with paralysis would be active members of society if they had the knowledge to adapt their lives, and they are bringing together the paralysis community to make that happen.